Each holiday season, Great Care celebrates the joys of the season, including time spent with friends and loved ones. These moments are especially important for those we care for who may have Alzheimer’s.

The holidays can present bittersweet challenges while playing host to the making of cherished memories for families and caregivers, says Julie Sullivan, Founder and CEO of Great Care. “The National Institute on Aging reminds us that the holidays can be meaningful, enriching times for both the person with Alzheimer’s disease and his or her family.”

“And maintaining or adapting family rituals and traditions helps all family members feel a sense of belonging and family identity,” the Institute says.

“For a person with Alzheimer’s, this link with a familiar past is reassuring. However, when celebrations, special events, or holidays include many people, this can cause confusion and anxiety for a person with Alzheimer’s,” adds the Institute. “He or she may find some situations easier and more pleasurable than others.”

The National Institute on Aging suggests finding the right balance and celebrating holidays important to your family while including the person with Alzheimer’s as much as possible.

”Set your own limits, and be clear about them with others. You do not have to live up to the expectations of friends or relatives. Your situation is different now,” the NIA says. “Many caregivers have mixed feelings about holidays. They may have happy memories of the past, but they also may worry about the extra demands that holidays make on their time and energy.”

These NIA tips help caregivers and those with Alzheimer’s visit reconnect with family, friends, and neighbors during holidays, starting with asking older adults to greet family at the door with gifts. Also:

• Involve the person with Alzheimer’s in simple holiday preparations, or have him or her observe your preparations. Observing you will familiarize him or her with the upcoming festivities. Participating with you may give the person the pleasure of helping and the fun of anticipating and reminiscing.

• Consider simplifying your holidays around the home. For example, rather than cooking an elaborate dinner, invite family and friends for a potluck. Instead of elaborate decorations, consider choosing a few select items.

• Encourage friends and family to visit even if it’s difficult. Limit the number of visitors at any one time, or have a few people visit quietly with the person in a separate room. Plan visits when the person usually is at his or her best.

• Prepare quiet distractions to use, such as a family photo album, if the person with Alzheimer’s becomes upset or overstimulated. Make sure there is a space where the person can rest when he or she goes to larger gatherings.

• Try to avoid situations that may confuse or frustrate the person with Alzheimer’s, such as crowds, changes in routine, and strange places. Also try to stay away from noise, loud conversations, loud music, lighting that is too bright or too dark, and having too much rich food or drink (especially alcohol).

• Find time for holiday activities you like to do. If you receive invitations to celebrations that the person with Alzheimer’s cannot attend, go yourself. Ask a friend or family member to spend time with the person while you’re out.

Included in the advice for caregiving during the holidays is to prepare guests that the person with Alzheimer’s disease does not always remember what is expected and acceptable.

”Give examples of unusual behaviors that may take place such as incontinence, eating food with fingers, wandering, or hallucinations,” the NIA says.

“If this is the first visit since the person with Alzheimer’s became severely impaired, tell guests that the visit may be painful. The memory-impaired person may not remember guests’ names or relationships but can still enjoy their company.”

As well as:

• Explain that memory loss is the result of the disease and is not intentional.

• Stress that the meaningfulness of the moment together matters more than what the person remembers.

The National Institute of Aging offers these tips to help the person with Alzheimer’s disease get ready for visitors:

• Begin showing a photo of the guest to the person a week before arrival. Each day, explain who the visitor is while showing the photo.

• Arrange a phone call for the person with Alzheimer’s and the visitor. The call gives the visitor an idea of what to expect and gives the person with Alzheimer’s an opportunity to become familiar with the visitor.

• Keep the memory-impaired person’s routine as close to normal as possible.

• During the hustle and bustle of the holiday season, guard against fatigue and find time for adequate rest.

For more information about holidays and Alzheimer’s, reach the
NIA Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at:

1-800-438-4380 (toll-free)
Email: adear@nia.nih.gov
www.nia.nih.gov/alzheimers

Contact the Alzheimer’s Association at:

1-800-272-3900 (toll-free, 24/7)
1-866-403-3073 (TTY/toll-free)
Email: info@alz.org
www.alz.org

The professionals at Great Care are available to talk with you and your family about all of your home care needs, including respite care. Great Care is a non-medical in-home care agency providing quality and affordable elder care in Fishers, IN and the surrounding areas. Call (888) 240-9101 for more information.